I brought Michael carry-out mu shu pork for dinner. It was frustratingly slow going, and I consumed two pots of peach ginger tea and two large glasses of water to get it all down but I did it! Small victories. I substituted wonton for my usual hot and sour soup and didn’t have room for dessert but I was able to eat at least a few bites of everything else – crab wontons, chicken lettuce wraps, and dynamite shrimp. We sat in a dark corner of the bar since my table manners aren’t great right now. We always get an array of appetizers to share and top it off with banana spring rolls for dessert. Today, I made up my mind I was going to go there and eat my usual fare. Chang’s frequently for lunch or dinner on the way to or from Hopkins appointments. Before this, my brother-in-law and I used to stop at P.F. My throat isn’t very sore but my tongue isn’t moving properly, nor is my jaw, so the food gets trapped in various unreachable places when I try to chew or in my throat on the way down. It’s especially upsetting to have the nausea return and to have so much trouble eating again. I’ve been rather depressed the past few days, longing for the ordinary post transplant life I’d happily settled into before this latest cancer turned everything upside down once more. Hurray, a step toward normalcy again, no more borg tubes. I was grateful I’d taken the pain killers ahead of time. Actually, it wasn’t bad at all, just a very brief twinge each time.
I’d also read this in another patient’s blog so was worried. She forewarned me that it would be “take your breath away” painful each time she pulled one of the four drains. We didn’t have to wait long at all and the nurse, Maureen, was very nice. I took some hydrocodone for pain and Ativan for nausea and hitched a ride with my brother-in-law downtown. Eventually, I obtained a number for the nurses’ station, and they told me I could come in anytime today or tomorrow for the drains. I tried calling the scheduler at noon but all I got was voicemail. I was expecting a call from Hopkins to reschedule my drain removal and my surgeon checkup, so naturally everyone but them called.
I had a bad night – couldn’t get comfortable for sleeping and got up irritable and nauseated again. This Cat in the Kettle video is very funny. It is a parody, however, of Harry Chapin’s Cat’s in the Cradle. “…the place where I eat every day at noon.”ġ1/1/12: No, this is not another from our Weird Al collection, although it is incorrectly attributed to him on the Internet.
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